One Family’s Fight to Save Daughters with Pick’s Disease
By Nicole Weisensee Egan People Magazine
Austin, TX - Belle, 6, and Abby Andrews, 2, were diagnosed with Niemann-Pick disease type C1 — a rare, genetic disorder sometimes referred to as “childhood Alzheimer’s.” Most children with this disease have an average lifespan of 10 years after diagnosis. Though heartbroken, the girls' parents, Chris and Pam quickly reacted and found promising clinical trials. They also started the Firefly Fund, a foundation to find a cure for neurodegenerative diseases that affect children.
February 28, 2017
For the Full Story Click Here
For More News Click Here